Caregiver
support helps family member come to terms with Alzheimer disease
Friday, April 7, 2006 -- Craig Anderson
With no family members in the surrounding Chatham area, Rosemary McCleary
is the principle caregiver for her husband, Keith, who has Alzheimer
Disease.
Realizing that she needed
to reach out for any extra help or care she could find, Rosemary
turned to the Alzheimer Society of Chatham-Kent.
The Society, who work with a number of long term
care homes – including Meadow Park Chatham, where Keith currently
resides – offer extensive counseling and educational supports
for family members and individuals dealing with Alzheimer Disease.
Their support has been invaluable, says Rosemary,
in helping her come to terms with the disease, which Keith was diagnosed
with in 1997 at the young age of 60.
“I was on my own, and it’s a very
long journey,” says Rosemary, who is now on the Society’s
board of directors, representing the consumer voice. “There
is no respite for the caregiver – there is no chance of ever
being divorced from it.”
Matching local need for respite care, the Society
developed a respite care program, where counselors and support workers
go into private and long term care homes to offer assistance to
family and staff. They also run “Day Away,” a day-long
activities program comprising total care for Chatham-Kent area individuals
who have the disease.
Megan Mackay-Barr, a social worker/counselor with
the Society, has been particularly instrumental in helping her confront
the disease, she says.
“It’s a very difficult disease,”
says Rosemary. “They have helped me to understand it –
and that has helped me manage it. You can’t change what’s
going on, but the counseling helps you respond to it.”
Rosemary has subsequently become very active with
the Society, organizing annual Alzheimer fundraiser Coffee Break,
fundraising for “Walk
for Memories,” and volunteering her time on the board.
Meadow Park recently held an Alzheimer Society
fundraising Italian dinner, which drew 100 family members, residents
and staff. The event raised more than $250 dollars for the society,
highlighting the strength of the partnership in the process, says
Lydia Swant, Resident and Family Services Coordinator.
“It’s very important for people in
the community to be aware of these type of partnerships –
we want to be proactive on this,” says Swant.
Although the drug Aricept helped delay many of
Keith’s symptoms during the early stage of his disease, it
“eventually caught up to him,” says Rosemary. In order
to digest the marked changes in behaviour as the disease progressed,
Rosemary turned to the Alzheimer Society, using its lending library
and the assistance of its staff.
“It was the little things that they helped
with too,” she says.
|